Voices of Lupus

Click on photo or name to
read their stories
 

Denice
Dorchester

     
Nan
 

Nan
South Hamilton

     
Doug
 

Doug
Framingham

     
Chris
 

Chris
Hopkinton

     
Erin
 

Erin
Boston

     
Penny
 

Penny
Vermont

     
    Voices of Lupus photos by
Lynne King



 

Penny
What you don't see

The pain is there.
It is real and deep.
It is not something that is
seen, unless you look into my eyes.

I have no discolorations or hair loss,
I have all my limbs and they move.
Yes, slowly sometimes with much
grumbling and complaining, but they move.

The person you "see" is in all respects healthy.
The person you don't "see" is usually in agony.
This person is tired in many ways.
Tired of complaining of being tired and achy.

The standard response to "How are you?"
Is "fine." It takes less time and nobody wants to hear
the painful details of your illness.
They don't believe most of it anyway because
it is not seen, therefore, it is not there.

Lupus? How do you spell that?
I have never heard of it.
Geesh, another one of those made up
diseases to get sympathy.

NOOOOOO…..believe me!
It is real. I am real. The pain is real.
The unreal part is that
You are my doctor……

 

 

 

 

 

 

 

 

 

 


 

This is my story. One voice from many and it is my hope that research will fund a cure. You can help me by contributing a gift of any size to the Lupus Foundation New England. Please click here to make a donation. With your help, we are building hope for a cure.

If you would like to submit your picture and share your story of lupus with others please contact Beverly Jarosz at the Foundation by emailing her at
bjarosz@lupusne.org